About

About LASID

Welcome to LASID, a vibrant and inclusive international society. This is the home of all professionals dedicated to the field of Primary Immunodeficiencies aiming to develop and perfect the education, scientific research, and health care within this medical specialty.

LASID started in 1993 as the Latin American Group of Primary Immunodeficiencies (LAGID), and evolved to a society in 2009. The LASID Registry program started in 2009 and currently includes over 6200 patients from 108 document centers in 14 countries in the Americas. This progress is a consequence of the educational programs, awareness campaigns, scientific congresses, and cooperation with sister societies and patients associations.

LASID holds a Fellowship Program for young professionals in training; a bi-annual Summer School Program targeting 40 fellows, 12 faculty members, and additional 80 observers; and a bi-annual constantly growing international congress. Our last edition in Argentina, in November 2015, included over 1200 attendees, half of them from several countries of the Americas and Europe, making it a strong international forum for Primary Immunodeficiencies.

LASID recently elected five committees: Education, Registry, Membership, Communications, and Juniors, the future of our society. These committees are composed by active and motivated professionals, strongly committed to the field of Primary Immunodeficiencies and to the development of LASID. Our society is inclusive and was developed by the volunteer and passionate work of its members, making this structure opened for all members willing to participate in LASID activities.

LASID membership is also constantly expanding. The input and participation of our members is the strength of our society.

Mission

 

Our mission comprises the following: To increase awareness in Primary Immunodeficiency Diseases (PIDD) at all levels all over the continent, to develop diagnostic capabilities to reach as many as possible patients and to favour the development of centers providing appropriate treatments for PIDD patients.

Awareness of PIDD involves:

  • Public awareness campaigns and physician education.
  • Lobbying and advocating with policy makers.
  • Local and continental educational programs.
  • Developing an effective and productive patient registry.
  • Collaboration with partner societies.

The development of diagnostic capabilities includes:

  • Training qualified professionals within participating centers and abroad.
  • Increasing early diagnosis in the región. (NBS)
  • Collaborative efforts with partner societies, patient organizations and foundations.
  • Collaboration among active diagnostic centers in the region.

Promoting the development of treatment capabilities and facilities accessible to patients are also part of the LASID mission including:

  • Collaboration with the pharmaceutical industry to promote, advocate and deliver appropriate and affordable treatment continent wide.
  • Learning from already existing strategies in the continent and providing advice to those involved in patient care.
  • Lobbying and advocating with policy makers.
  • Development of guidelines and policies to improve clinical care of patients.

You are all invited to take part of this mission and goals. LASID offers a unique possibility to contribute to the improvement of the life of patients and families in a large part of the world. Join and share your enthusiasm for these noble causes with many other like-minded friends.

History

 

In 1993, a group of immunologists from: Argentina, Brazil, Chile and Colombia, decided to form the Latin American Group for Primary Immunodeficiency Diseases (LAGID). Important goals of this organization were to include other Latin American countries and to create registries of primary immunodeficiency diseases (PID) in each participating country. The first results of this effort were published by eight countries in 1998.

After more than fifteen years since the creation of LAGID and its PID registry, many of the objectives set forth by this group have been accomplished. The group has grown from the initial four to a total of 14 countries with a wide population range. Scientific meetings with case presentations and discussions with international guest speakers have been held annually. During these meetings, participating members have had the opportunity to report and discuss their registries. Educational programs and national scientific meetings with pediatricians have improved the early recognition and treatment of some of these diseases. Cooperation with scientists in countries with well established immunology and molecular biology laboratories has helped other countries with limited resources, in the diagnosis of PID.

LAGID also led to the development of patient and parent support groups and to the creation of a Web Site to keep members informed of important events and to discuss diagnosis and treatment options for patients with PID.

After twelve yearly meetings in six different countries, two joint publications and multiple courses, conferences and collaborative efforts, it was time to follow the lead of the European Society for Immunodeficiencies (ESID) and become a Society. Again, the birth of LASID occurred in Santiago, Chile in August of 2009 after a very long gestation with government agencies and the establishment of a legal Foundation.

Finally, LASID came into existence in October of the same year in Cartagena, Colombia where the first LASID Meeting was held with members, friends, trainees, patients and parent organizations and industry sponsors.

Past meetings:

  • Mexico City 2011
  • Santiago de Chile 2013
  • Buenos Aires, Argentina 2015

Membership Committee

 

The Membership Committee shall review the applications for eligibility on the basis of criteria approved by LASID bylaws including good moral and ethical character. This Committee will approve memberships based on the majority of voting. Determination by the Membership Committee shall be final in its sole discretion and cannot be appealed. The Membership Committee may, in exceptional circumstances, waive any requirement of membership in any class in any particular instance. The Membership Committee together with the LASID President, Vice-President, and the Secretary should appoint a Commission composed of regular members in good standing to handle moral and ethical issues related to LASID membership.

The Membership Committee should outreach and accommodate within LASID, all national interest groups on Primary Immunodeficiencies throughout Latin America, current participants of the LASID Registry (approximately 100 centers), sister scientific societies throughout Latin America and other continents (Allergy-Immunology Societies, Pediatric Societies, Immunology Societies, Infectious Diseases Societies, Newborn Screening Societies, Genetics Societies, etc.), stimulating LASID membership, advertising LASID and proposing partnerships.

An up-to-date list of good standing members and individuals who have applied for membership and that fulfill the requirements to become members of the Membership Committee shall be made available online at the LASID website. Finally, the membership Committee should manage to have LASID membership in good standing with their annual dues.

Cabeza: Soledad Caldirola 
Leonardo Oliveira
Natasha Ferraroni
Manuela Olaya

Website / Communications Committee

 

The purpose of the Webpage / Communications committee is to develop and oversee all communication vehicles for the LASID membership. This primarily includes the LASID website and all related editorial policies and procedures. The committee is responsible to keep up-to-date information about LASID regular activities with emphasis on LASID Bi-Annual Meetings, LASID Summer School Program, LASID Fellowship Program, and LASID Registry.

The Website / Communications Committee should nominate a Commission of LASID experts to develop channels of communication with editors of related scientific journals (Latin American and international journals), aiming to encourage manuscript submissions from LASID members, as well as to provide guidance throughout the editorial process. An up-to-date list of journals starting with the Journal of Clinical Immunology (official LASID journal) as well as other journals should be made available in the LASID Website.

Head: Aristoteles Alvarez Cardona
Elie Mansour
Herberto Chong

Registry Committee

 

The LASID Registry Committee is responsible for the maintenance and further development of the LASID Registry. This committee should manage all technical issues, continuously update it with new information related to known PID as well as new diseases as they are reported. This committee will also advice the Registering Centers with administrative and ethical issues, and will provide data analysis for study initiatives using Registry data and answering queries on patient cohorts for further studies.

The aim of the LASID registry is to expand the current common data pool and estimate the disease burden of PID in Latin America, and to provide an internet-based database for clinical and research data on patients with PID. This database is a platform for epidemiological analyses and can also serve as a tool relevant for the development of new diagnostic and therapeutic strategies or the identification of novel disease-associated genes.

This committee should also promote PID registry within the national PID groups of interest throughout Latin America, develop clinical epidemiological investigational protocols, and elaborate regular progress reports.

Cabeza: Gisela Seminario
Juan Carlos Bustamante
Lina Rocío Riaño

Education Committee

 

The Education Committee is responsible to plan and develop education activities for LASID as well as approve and monitor any jointly sponsored activities. This committee is also responsible to review the overall educational program on an annual basis. This committee should work in parallel with the Website / Communications Committee to offer educational materials and appoint scientific publications and policies that will be of interest of LASID membership.

This committee should manage the LASID Summer School Program, LASID Fellowship program, develop the educational program for the LASID Bi-Annual Meetings, assist national PID groups to develop local educational programs, select and advertise all LASID related educational programs in the several countries, develop educational materials about diagnosis and management of PID patients and make it available at LASID website.

Head: Ekaterini Goudouris
Saul Lugo
Cecilia Poli
Andrés Arias Serra

Junior Committee

 

The LASID Junior Committee will be composed of LASID members in training, in good standing, and will be responsible for developing and overseeing benefits and programs for current and future Trainee Members. The LASID Juniors Committee will meet regularly via conference call and will work with other committees throughout the year to assist with LASID regular activities such as the LASID Bi-Annual Meetings, LASID Summer School, LASID Registry, and LASID Fellowship program.

contact:  juniors@lasid.org

Head: Ileana Moreira
Nuria Zurro
Carlos Andrés Arango

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